PHILADELPHIA (CBS) – A new documentary on a rare brain disease will be released this weekend, featuring a family in West Chester and scientists at the University of Pennsylvania. CBS Philadelphia got a teaser.

The film is called “Eloquent” and it is about patients in terrible condition who find strength and support each other. They have high hopes for what could be a groundbreaking therapy being studied at Penn.

“The entire right side of my body is affected,” Trent Clayton said.

Clayton has some mobility problems related to a rare brain disease.

“It can be difficult at times,” said Clayton.

Clayton and his mum Darla, who live in West Chester, have abnormal blood vessels and brain damage. The condition is called a cavernous malformation.

“I’ve had a headache every day for four years,” Darla said.

For Trent. who is 19, started when he was a child who didn’t use his right hand, an issue that doctors shouldn’t have taken lightly.

“They assured us that he is probably only left-handed, and unfortunately this happens to many of our people when doctors don’t take the problem seriously,” said Darla. “We came home and his brain was bleeding for months because the doctor didn’t think it was a big deal.”

Trent has undergone three brain surgeries.

“He said,” What if I die? ” Darla asked. “It stopped us in our tracks. How to answer that? We don’t know what’s going to happen.

Their story will be one of three featured in a new documentary entitled “Eloquent”.

“As they cut into his brain, black blood began to spill out like motor oil,” he said. “I’ll always have this picture.”

Premiere of the documentary on Sunday in Ambler.

“That’s pretty cool,” Trent said. “It’s gonna be really fun.”

The video also features scientists from the University of Pennsylvania working on a potentially revolutionary therapy.

“We now have a model where we were able to stop the progress of changes in the laboratory,” said Dr. Jan-Karl Burkhardt, “and we’re excited.

Burkhardt, a neurosurgeon and researcher, says it would be an important alternative to surgery, the only treatment currently available.

So from a brain surgeon to a movie star?

“Yes, I’m not really a movie star,” said Burkhardt.

He shares the spotlight with Trent, who despite his condition breaks track and field records.

Document produced by Alliance to Cure Cavernous Malformation. The premiere is Sunday in Ambler.

There will also be a benefit performance on Saturday in Conshohocken.

More information about the documentary and benefit concert, click here.

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